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Rare Disease Day

February 28 @ 12:00 pm - 1:00 pm

Did you know that 1 out of 10 people are affect with a rare disease and over half are children.  What can YOU do?  Bring awareness to rare diseases in our community.  Join us on February 28 from noon – 1:00pm.  The goal of Rare Disease Day Spokane is an advocacy event to draw attention to rare diseases as an important public health issue. This is an opportunity for patients, caregivers, medical professionals, students, educators, legislators and industry representatives to come together to learn about rare diseases and what it’s like to live with or care for someone with a rare disease.

Speakers include: 

12:00:   Mary McDirmid – Speaker, Momboss, Rare patient advocate

12:15:  Theresa Whitlock-Wild – ALS advocate & caregiver, cofounder of Matt’s Place Foundation, Badass

12:30:  K. Michael Gibson, PhD – Professor Pharmacotherapy Dept, Rare disease researcher

12:45:  Ask us anything – Panel discussion 

To sign up for this free event – go to Eventbrite.com for tickets.  Lunch is provided.

Contact Mary McDirmid if you have any questions.  mary.mcdirmid@rareaction.org

Details

Date:
February 28
Time:
12:00 pm - 1:00 pm
Event Category:

Organizer

Heidi Medford

Venue

SAC 147
600 N. Riverpoint Blvd. + Google Map